We've just received the diagnosis: what now?
The doctor confirmed early-stage dementia. We left the appointment in shock. Where are we supposed to start?
The day of diagnosis divides life into before and after — but the "after" almost always begins with much more good time ahead than fear suggests. Here's a plan for the first few months.
1. Digest (weeks 1-4)
Shock, denial, anger, relief at having a name — everything is normal, for the person with dementia and the family. Don't make big decisions yet. Talk to each other; if the person wants to talk about the illness, let them; if they need a break, respect that.
2. Inform wisely
- Decide together who to tell and when — it's their diagnosis, the final word is theirs.
- Learn about the illness from reliable sources (Alzheimer's associations, health services) and in doses: there's no need to read about the advanced stage this week.
3. Plan while their voice counts (months 1-6)
- Legal: power of attorney/legal protection figure in your country, advance directives, will — done NOW, while they are capable, these are the greatest gift of future autonomy.
- Financial: access to accounts, future expenses, existing rights and support in your country.
- Medical: ask about available medication, clinical trials, and schedule regular follow-ups.
- Write down their preferences (the "Getting to Know Me" document): likes, routines, wishes — gold for the future.
4. Continue living
Exercise, socialising, projects, postponed trips: the early stage is FOR living. Many people live for years with good quality of life — fill those years.
Sources: Alzheimer's Association; NIA — National Institute on Aging (USA).