About Us

The challenges no one prepared us for

We discovered, in practice, what many caregiving families already know: this illness asks for no permission. It does not wait for our working life to be in order, the children settled, or energy to spare.

We try to balance work, personal life and supporting our parents, often unsure whether we are doing enough — or doing it well. Our mother, with physical limitations of her own and little ease with technology, became our father’s main carer, 24 hours a day, seven days a week. We watch her grow more and more tired, facing alone the new challenges that arise as the illness advances — and needing answers we cannot always give her.

I searched for information. And I found plenty — scattered across the internet, sometimes contradictory, sometimes hard to apply in the real daily life of a carer, especially when that carer does not have a computer or a phone at hand to keep searching.

That is when I decided to act. As a developer, I knew I could build something that would help — not only my family, but every family walking the same path. And from the very first moment, I had my family’s unconditional support to turn that will into a project.

What I am building

Dementia Support Guide is the project I wish I had found the day it all began. I built it alone, and responsibility for the content is entirely mine: I write and organise it myself, drawing on reliable sources of knowledge — such as Alzheimer’s Society and the World Health Organization — and every situation lists the sources that informed it at the foot of the page. My family supported me from day one, but the content is not clinically validated: it is practical information for the daily life of a carer, not medical advice. For clinical decisions, the right place is always your doctor.

More than that: we want this information to reach those who need it most, even without easy access to technology. That is why we are organising everything into guides that can be printed — clear, simple to understand, designed to accompany the carer day by day, as a physical support to turn to whenever it is needed.

Because we know, from our own experience, that living with an illness that will not ease is one of the quietest and most demanding challenges a family can face. And no one should face it alone.

A network, not a person

If you care for someone with dementia, you know what we mean: the exhaustion, the lack of trustworthy information, the feeling of always improvising. We have been through it too — and still are.

This project is our way of turning that experience into something useful for other families. And it is also a reminder that, just as our family came together around our parents, a network can also exist around yours.

A project that is just beginning

Dementia Support Guide is now taking its first steps, but our goal is to keep growing: more content, more guides, more answers to the real questions that caregiving families bring us.

For that, we need you. You can support this project with a donation or by purchasing our printed guide, tailored to the needs of those caring on the ground. Every contribution helps us reach one more family that, like ours, is looking for clear answers at a time when everything feels more confusing.